EA – refers to Earthly Angels. A few years ago when on our forum, Theresa, precious Donny’s Mom stated that both families of CDH Angels and Children who survive CDH were all survivors. We agreed and at her suggestion started calling the survivors of CDH, Earthly Angels (EA) and the children who decided that wings would be more fun, Heavenly Angels (HA).

This page is for General Resources for Earthly Angels and their families. Please feel free to contact us if you have any suggestions for us or any of the links are not working!

Government Resources for Families (Income may not be a factor)

Partnership for Prescription Assistance

PAGER
Organization is a nonprofit organization that provides information and support for families and doctors about Gastroesophageal Reflux (GER)

Yahoo Group
Supporting Caregivers of Children with Eating Disorders

KCRC Feeding Program

Alexander Graham Bell Association for the Deaf and Hard of Hearing

John Tracy Clinic
Resources for Parents, Infants and Toddlers with Hearing Loss

Scoliosis Research Society

MedicAlert Bracelets

Center for Disease Control
Tracking Flu and RSV

US National Library of Medicine and the National Institutes of Health
A search engine for summaries of Medical Studies

 

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