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Expectant-New Parent Package

Expectant/New Parent Packages
Since 2007, we send parents who are expecting or have a newborn with CDH a Care Package which includes blankets, Guava Mitts and a hand print kit for their precious warrior.  Also included are Printed Materials we have produced through collaboration with other CDH families and review and revision by Medical Professionals:

Breath of Hope’s Expectant Parents Booklet which has a broad outline of information about being a parent of a CDH Baby Breath of Hope’s NICU Equipment Booklet which has pictures and descriptions of equipment your child may be utilizing during their NICU stay

NICU Terminology Brochure, Document “What to Ask the Health Professionals” and a NICU Baby Book (tailored to having a baby in the NICU).

We also include a Journal, information on CDH Research Studies, a disposable camera to keep in the NICU and various other items donated to Breath of Hope from families to continue this program.

Parents Bringing Home their CDH Baby from the Hospital
We send a Booklet which outlines general care and concerns families may have and issues that may arise or to have an idea of – if they happen. Some babies go home and have no issues resulting from CDH. Many go home and have issues that in time are resolved they usually lose their accessories (Oxygen, Tubes for Feeding, etc.) as they get older. We used the guidelines from the American Academy of Pediatrics for CDH Children.

Parents Whose Child Chose Wings Over Feet
We send a book on grief, Breath of Hope’s In the Event of an Angel and also a card.

Ribbons for Everyone!
We send anyone who requests – Turquoise Ribbons at no charge. Breath of Hope believes if you are wearing a ribbon and someone asks you what it is for – you are promoting Awareness of Congenital Diaphragmatic Hernia – which is our Mission and our Goal! Since 2007, Breath of Hope has given out over 10,000 Awareness Ribbons!

United Way Day of Caring – Giving a Hand to Create Hand Print Kits
http://www.dayofcaring.info/
In September 2008 and September 2009, through the United Way Thomas Jefferson Area in Charlottesville, Virginia we had several amazing volunteers from the University of Virginia who helped us assemble hand print kits. In 2008, Five hundred (500) kits were assembled – 450 donated to the University of Virginia Children’s Medical Center NICU for all families admitted. Breath of Hope has 50 of these kits for our Expectant Parent Packages. In 2009, 400 hand print kits were assembled and the volunteers helped us place over 1,000 ribbons on cards. The local Walmart in Charlottesville, Virginia gave a grant which covered the cost of the materials needed to make all kits. We are happy to share how we did this for anyone who would like to do a similar project for their local Hospitals and NICUs! Please feel free to email us at boh@breathofhopeinc.com This e-mail address is being protected from spambots. You need JavaScript enabled to view it for information.

Breath of Hope Scholarships - this particular program has been placed on hold until we raise more funds
Breath of Hope, Inc. offers five scholarships for a one time payment to an institution of higher learning for tuition and books for scholarship winners. These scholarship awards were made possible though Breath of Hope’s Congenital Diaphragmatic Hernia Awareness Day® Campaign and a grant from GMAC Financial Services.

  1. Miracle Scholarship- for a survivor of the congenital diaphragmatic hernia birth defect.
  2. Hope Scholarship- for any family member of a child who had a congenital diaphragmatic hernia birth defect.
  3. Faith Scholarship- for anyone who is going into or furthering their education in Nursing
  4. Beyond Measure Scholarship- for anyone who will be furthering their education to become a Medical Doctor.
  5. Wisdom Scholarship – for those furthering their education in PhDs, or any graduate degree which would further the research, care and awareness of congenital diaphragmatic hernia.

Each scholarship for 2010 will be a one time payment of $1,000 and will be sent to the institution of higher learning the recipient is attending. As with any scholarships, we request all funds are for the tuition and/or books for the recipient’s education and if the recipient is unable to use the funds that they are returned to Breath of Hope so that the funds can be reinvested to continue to benefit future scholarships.

Please contact us at scholarships@breathofhopeinc.com This e-mail address is being protected from spambots. You need JavaScript enabled to view it for the application and instructions.

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