Please Click on one of the Following Links to Download Resources:

CDH Awareness Week Request – Sample Letter

CDH Awareness Week Proclamation Sample for Governor (of State)

CDH Awareness Week Proclamation Sample for Mayor (of City)

CDH Awareness Week Brochure

CDH Awareness Day Ideas

Press Package for Breath of Hope CDH Awareness

SRES 204 IS – Text

What Is CDH Brochure

On July 18, 2012, Senator Sessions (R-AL) who co-sponsored the Senate Resolution 204 – National Congenital Diaphragmatic Hernia Awareness Day 2010, introduced S. 3396 – Congenital Diaphragmatic Hernia Research Act of 2012 which is co-sponsored by Senator Cardin (R-MD).  This Bill is to amend the Public Health Service Act to increase public awareness of congenital diaphragmatic hernia and implore the NIH (National Institute of Health) to research the current funding levels of funds which are allocated to CDH research and also consider allocating funds and other resources for CDH Research.  Other Resources would be the NIH launching a campaign to educate the general public and those who are facing a diagnoses.  It would also include the NIH encouraging Pharmaceutical and Biotechnology Companies to start studies or collaborate with already existing studies to further research into congenital diaphragmatic hernia.

Breath of Hope supports this Bill and we have standard letters here for you to write your Representatives and Senators in Congress. To find your Reps and Senators you can locate them here:  http://www.house.gov/representatives/find/ from there you can locate their websites and contact them directly to support this legislation or you can download the file below to edit and send to them.  As of August 3, 2012, the Bill is currently with the US Senate Committee on Health, Education, Labor & Pensions (HELP) and you can also contact those on this committee, the link to this committee and those serving is right here:  http://www.help.senate.gov/

Congenital Diaphragmatic Hernia Awareness Research Act of 2012 – Letter to write Reps and Senators in Congress

Each letter counts!

 

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