On July 31, 2007 the Board of Directors of Breath of Hope, Inc. launched the Congenital Diaphragmatic Hernia Awareness™ campaign by writing to their respective governors requesting Proclamations designating March 31st as Congenital Diaphragmatic Hernia Awareness Day®.

Breath of Hope was overwhelmed by the response to our Congenital Diaphragmatic Hernia Awareness™ campaign.

On April 14, 2010, the United States Senate passed Senate Resolution 204 which made March 31, 2010 National Congenital Diaphragmatic Hernia Awareness Day. Senate Resolution was written and edited by our Board of Directors. A mother and grandmother of an amazing CDH Angel passed it on to Senator Vitter who introduced it to the Senate in 2009. The resolution was unanimously approved, very little was changed from the original Breath of Hope’s Board had finalized.

Each year, each state needs a request in order to issue a Proclamation or Resolution to have March 31st of that year Congenital Diaphragmatic Hernia Awareness Day. Many states will issue copies to each person who makes this request. Since 2008, there have been 42 states that have participated and issued Proclamations or Resolutions.

Please help us for 2013! Our goal for 2013 will be for States and Localities to Proclaim the Week of March 25th – 31st  Congenital Diaphragmatic Hernia Awareness Week!

Our ultimate goal is to have the United States Congress, both the Senate and the House of Representatives to pass a Resolution which would go on to the President for their signature. We would like the last week in March to always be Congenital Diaphragmatic Hernia Awareness Week in the United States.  This would be a platform to continue awareness and also further research efforts.

We have one goal, getting the word out!   We believe that we succeeded because people like you have stepped up, wrote your Governors and made the difference. We would like to thank everyone for their efforts in making Congenital Diaphragmatic Hernia Awareness Day® successful and all those who continue this effort!

If you would like to join our efforts for Congenital Diaphragmatic Hernia Awareness Week, please contact us and we will forward a sample letter and proclamation to you.  You can also go to this link on our website which has the documents you can download to contact your Governor or Mayor.

If you would like to purchase Awareness items, please visit our CafePress store.

Awareness comes from within and radiates throughout. – E Doyle-Propst

 

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